

I wanted to ask for your prayers. We went to Matthew's growth specialist this last week. He has been going to an Endocrinologist since he was born, as he was born with Intrauterine Growth Restriction (a congenital condition that caused him to not grow properly in my womb, for no apparent reason, I am all our doctors medical mystery, what a title!) and was so small for his gestational age ( I feel that I could write a manual for this stuff now, for parents having to go through all this) and he needed to be monitored. Well, when we went in to his doctor she advised us to get Matthew on the HGH Human Growth Hormone, as MAtthew was born SGA, small for gestational age and this means that he didn't catch up by the time that he was 2, this happens in 1 out of 10 children. Matthew still falls in the 5 percentile on the growth charts, as he has his entire life.
This really hit me hard, it has always been a choice, a possibility that the doctors have talked about but I really as a mom didn't want to go there. With all that Matthew has already been through, and we as a family have been through, I didn't want to cause him more issues, more pain (these are shots given once a day until he for at least 6 years... that in itself is VERY daunting and hard for me to face as his mom, who used to have panic attacks just going in for a doctor visit, thank you Lord, I am much better now, can pray through all that, God knows! and who wants to give their child a shot everyday!) and I didn't know the side effects (which are minimal I see now), and what could or couldn't happen. I was very emotional that day when the doctor looked at Daniel, then at Matthew and said, yes, Sharrie, I think that if Matthew were my son that I would do the HGH as I look at his younger brother, who could catch up and pass him up by the time they are 8 and 5, and maybe be the same size. I didn't know how to take all that, I was pretty in shock as the reality hit in that my son is small or his age and he didn't hit that spurt like they said would happen. That was on Tuesday, Friday we were still just talking and looking at all the material that the doctor had given me about a drug called genotropin and trying to decide whether this was what we wanted to do. Then on Friday night, it was so weird, on 20/20, which I never sit down and watch... came on, and low and behold it was about growth and how it effects people. When they did this study on these two 12 year olds it really hit home to me. Matthew's doctor had talked about the social and personal impacts that height can play, especially to boys and I really didn't know what she meant, until I watched this show. I tell you, it was God. These kids HATED being short and they were so messed up about it. I was so sad, so grieved. It sort of ignited something in me, of wanting to do this for Matthew, I didn't want him to look back and say, mom, dad, you could've helped this!
So, today we put in for the request to our doctor to go ahead and see if we can get this approved by Matthew's insurance. It costs approx. $30,000.00 a year, so it isn't cheap by any means! I know, it is a hard decision... but you know, what would you all do if you were in our shoes. Please reply with your thoughts, comments, or if you all have any experience with this, pray for a good go of this, and for peace. I worry, that is what I do! I worry about long term effects, like when he is older, as they have only been giving humans the HGH for 20 years, in this particular form and so I worry about what the effects will be, it is scary. But isn't life just a huge scary thing! TRUST, I have to trust the Lord (boy he wants to build that in all of us everyday, huh?!) I ask that you pray for guidance, wisdom and discernment for our family. Love you all, God bless ya! And thanks for your support!
4 comments:
Sharrie, I think that I saw the tv special that you are talking about...very touching! I believe that you guys are great parents and will make the perfect choice...God Bless! You guys will be in our prayers!!!
Kristen, Thanks so much for your words of encouragement and prayers! God bless you too!
Hey there...this is amy...just a side note..."the stoddard's" are amy and leo..."the stoddard family" is aaron and kristen. Confusing, but I know they are thinking of you guys too!
oh brother, I am a ditz! I appreciate you writing to let me know that! Ha! :) Thank you for your prayers! Hope all is well with you!
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